1. A Really Excellent Fantasy

    3

    December 1, 2017 by whirlyjoy

    My role then is simply to take awe and delight in watching these gorgeous people grow.

  2. Writing her own life

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    November 10, 2017 by whirlyjoy

    My Dragon Lover and I were sitting up in bed, watching the election results on Tuesday evening, when my iPhone …
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  3. Abuse in the form of a hamburger

    4

    November 3, 2017 by whirlyjoy

    This past summer we experienced one of those incidents with Aida’s supported living situation that I live in fear of …
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  4. Business casual and beyond

    4

    September 18, 2016 by whirlyjoy

    This year Aida has started a pre-vocational program as part of her school day. It’s in the mailroom of the district’s main …
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  5. Driving, driven, and staying the course

    2

    September 4, 2016 by whirlyjoy

    I kept waiting for someone, one of these many experts, to realize how very much in-over-my-head I was, how utterly ill-equipped and unsuited to this role of coordinating Aida’s care between a small jumble of barely overlapping spheres of expertise.

  6. Heaven by way of the swimming pool

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    February 22, 2015 by whirlyjoy

    She looked tiny under the sheets of her deathbed, this woman who for most of my life was a towering, outgoing and whirlwind presence, fully able to live up to the strong promise of the size-12 Irish peasant feet that carried her as she strode through her days.

  7. Phantom limbs

    3

    November 6, 2014 by whirlyjoy

    Even after I had consciously accepted that I would never hear Aida’s voice shaping anything other than low chirps and decibel-breaking shrieks, still I would dream vivid, lengthy, exhausting dreams, filled with the sound of Aida in speech.