Category Archives: Autism family life

  1. Driving, driven, and staying the course

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    September 4, 2016 by whirlyjoy

    I kept waiting for someone, one of these many experts, to realize how very much in-over-my-head I was, how utterly ill-equipped and unsuited to this role of coordinating Aida’s care between a small jumble of barely overlapping spheres of expertise.

  2. Heaven by way of the swimming pool

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    February 22, 2015 by whirlyjoy

    She looked tiny under the sheets of her deathbed, this woman who for most of my life was a towering, outgoing and whirlwind presence, fully able to live up to the strong promise of the size-12 Irish peasant feet that carried her as she strode through her days.

  3. Phantom limbs

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    November 6, 2014 by whirlyjoy

    Even after I had consciously accepted that I would never hear Aida’s voice shaping anything other than low chirps and decibel-breaking shrieks, still I would dream vivid, lengthy, exhausting dreams, filled with the sound of Aida in speech.

  4. That autism groove

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    August 21, 2014 by whirlyjoy

    Aida came back home last week to sleep over (“at Mom’s house”) for the first time since her move to …
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  5. Giving Superwoman the boot

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    April 6, 2014 by whirlyjoy

    We have no guarantee that our kids, of any stripe, will be drawn to the same things we are, or to anything that our limited imaginations can come up with for them.

  6. Working to pull the pieces together

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    September 20, 2013 by whirlyjoy

    Baby ducks are bright yellow with chubby orange beaks, aren’t they?

  7. Shifting gears with a slippery clutch

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    September 12, 2013 by whirlyjoy

    If this blog post is a bit disjointed, that suits the subject matter. Autism definitely puts a family and everyone in it out of joint.