Category Archives: Autism family life

  1. Get out of the way, Mom

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    July 12, 2020 by whirlyjoy

    Isn’t it great when parenting becomes simply getting out of their way? And when you forget, they’ll let you know.

  2. Good and bad hair days

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    July 4, 2020 by whirlyjoy

    I’ve had the same hair stylist for almost as long as I’ve had my children. Back then when my stretch …
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  3. Let the pizza lead the way: adapting to circumstances

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    June 23, 2020 by whirlyjoy

    Stay home stay safe in a skinny townhouse is an exercise in mental gymnastics and physical navigation, with four full-sized …
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  4. Staying healthy in Seattle

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    March 8, 2020 by whirlyjoy

    While Seattle is steeped in COVID-19 panic, Aida’s focus remains laser-sharp on what matters most.

  5. Ma’am, I’m a wrestler

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    July 6, 2019 by whirlyjoy

    The firefighters drove up in their big red truck. No flashing lights or sirens blaring, but still an impressive entrance. …
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  6. Writing her own life

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    November 10, 2017 by whirlyjoy

    My Dragon Lover and I were sitting up in bed, watching the election results on Tuesday evening, when my iPhone …
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  7. Abuse in the form of a hamburger

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    November 3, 2017 by whirlyjoy

    This past summer we experienced one of those incidents with Aida’s supported living situation that I live in fear of …
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  8. Driving, driven, and staying the course

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    September 4, 2016 by whirlyjoy

    I kept waiting for someone, one of these many experts, to realize how very much in-over-my-head I was, how utterly ill-equipped and unsuited to this role of coordinating Aida’s care between a small jumble of barely overlapping spheres of expertise.

  9. Heaven by way of the swimming pool

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    February 22, 2015 by whirlyjoy

    She looked tiny under the sheets of her deathbed, this woman who for most of my life was a towering, outgoing and whirlwind presence, fully able to live up to the strong promise of the size-12 Irish peasant feet that carried her as she strode through her days.

  10. Phantom limbs

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    November 6, 2014 by whirlyjoy

    Even after I had consciously accepted that I would never hear Aida’s voice shaping anything other than low chirps and decibel-breaking shrieks, still I would dream vivid, lengthy, exhausting dreams, filled with the sound of Aida in speech.