Category Archives: Autism family life

  1. Heaven by way of the swimming pool

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    February 22, 2015 by whirlyjoy

    She looked tiny under the sheets of her deathbed, this woman who for most of my life was a towering, outgoing and whirlwind presence, fully able to live up to the strong promise of the size-12 Irish peasant feet that carried her as she strode through her days.

  2. Phantom limbs

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    November 6, 2014 by whirlyjoy

    Even after I had consciously accepted that I would never hear Aida’s voice shaping anything other than low chirps and decibel-breaking shrieks, still I would dream vivid, lengthy, exhausting dreams, filled with the sound of Aida in speech.

  3. That autism groove

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    August 21, 2014 by whirlyjoy

    Aida came back home last week to sleep over (“at Mom’s house”) for the first time since her move to …
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  4. Giving Superwoman the boot

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    April 6, 2014 by whirlyjoy

    We have no guarantee that our kids, of any stripe, will be drawn to the same things we are, or to anything that our limited imaginations can come up with for them.

  5. Working to pull the pieces together

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    September 20, 2013 by whirlyjoy

    Baby ducks are bright yellow with chubby orange beaks, aren’t they?

  6. Shifting gears with a slippery clutch

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    September 12, 2013 by whirlyjoy

    If this blog post is a bit disjointed, that suits the subject matter. Autism definitely puts a family and everyone in it out of joint.

  7. Summer Camp, part 1, or, Getting from there to here

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    July 22, 2013 by whirlyjoy

    Aida was dubious at best when we left home for something called “camp” that she had no real concept to match up with – and as we drove further from the familiar urban landscape, her anxiety grew even greater than mine.

  8. Mind the gap

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    June 6, 2013 by whirlyjoy

    Last week I had to pick Mimi up early from school for an appointment, and found myself in unwilling conversation …
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  9. Chaos du jour: Swimwear

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    May 20, 2013 by whirlyjoy

    Aida still occasionally flashes the patrons of the evening open swim at the community center pool – uncaring of modesty, I assume because of her autism, although it might just be the French half of her DNA coming out.

  10. On love and space freighters

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    March 9, 2013 by whirlyjoy

    There’s no series of behavioral or learning objectives that leads up to feeling love and being able to tell someone about it – but that ability to pluck an emotion out from the whole swirling muddle within ourselves and give it meaningful expression is one of the mysteries of being human.